Category: Facebook

Idan, cold and all, playing with one of his birthday gifts

Today was a strange day. It’s was our 5 year anniversary and Idan went over to Amanda’s family for an “adventure”. Like every Saturday, the day started off with Idan’s SubQ IGG infusions and a nice bowl of cereal  then Idan’s grandfather picked him up and Amanda and I went downtown for a lovely brunch (turns out Amanda and I have not taken the subway together in over 16 months!). After brunch, Idan, who had woken up with the sniffles started to run a slight fever, so we came back up to Amanda’s family to be with him. It’s a tricky week for him to get a cold as we are trying to get him off steroids but his own system is still not making enough cortisol. By dinner time he had a fever and we started to worry that we might need to go to ER. We spoke to our amazing pediatrician who takes our calls on weekends, and decided to wait to see how he is in the morning. We canceled out dinner plans and babysitter (my brother) and Idan ended the day getting cheered up with a new dish set toy he got for his birthday. Currently he is already sound asleep while I write this post. We lead a strange life. There is no rest for the weary. Hope tomorrow he is feeling better.

Idan playing at his grandparents.

From Facebook:

Day 147: Idan has been busy helping us unpack and along the way Amanda taught him how to catch a ball. Not bad for a 20 month old who spent 60 days in the hospital this year, don’t you think?

From Facebook: