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Day -4: Still in Pain :(

Examining his CBC

Examining his CBC

It’s always the unexpected in transplant. Idan has been tolerating all the chemo well so far (but it’s still very early and the nasty side effects might wait a couple more days or weeks to show themselves), but his recovery from the central line surgery has been more difficult than it should be. He has had a lot of pain in his neck, a fair amount of bruising, and now his jaw muscles are bothering him. We are hoping it’s just a slow recovery and that there is no other underlying issue going on, but we are trying a couple things to see if it eases his discomfort. In the meantime, we are happy to now have 3 days of chemo behind us, with one of his chemo meds finished altogether today. We just started a pretty harsh immunosuppressant called ATG today, and Idan was pre-medicated with some Tylenol and Benadryl to reduce the risk of a serious allergic reaction. The ATG and the chemo continue for two more days and then Idan gets a day of rest before his transplant on July 18. Thanks for all the love, prayers and encouragement. It’s a long, difficult and unpredictable road ahead, but every day that we are moving forward we are that much closer to a cure.

 

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Idan Getting his Antibody Infusions – SCIG

Idan is doing a lot better. Thanks all for the good thoughts and prayers. If you ever wondered how Idan’s weekly infusions go, see below clip just posted to the HIGM Foundation site. Just FYI, Idan’s matter of fact approach to getting poked by three needles is not normal for a kid his agesmile emoticon We are very fortunate that he does so well with these infusions. See more here: http://www.hyperigm.org/immunoglobulin-replacement-therapy-examples/

Idan Has A Virus :(

Poor Idan has a really bad virus. Was up all night coughing and sneezing. Today at the doctors, even though he was so tired and out of it, he still insisted on giving Amanda a full check up. We still don’t know what it is, we did X-rays, virus swans and a lot of blood test. So far no clear picture. Probably a bad virus. Hoping he starts feeling better soon.

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