For the last week we have been packing up our home on two fronts: packing for a 6 month stay in Seattle for Idan’s transplant and packing up our apartment for subletting. On the first front it is really out of control as it turns out that besides the fact that Amanda and I are pack-rats, it turns out that 14 month old boys travel like pop stars and have a ton of stuff. Not to mention all the meds and infusions we need to take with us for the first two weeks of tests before he gets admitted to Seattle Children’s Hospital. And then there is a whole bag just for his food and bottles for the first 24-48 hours until we can buy more. We have been so fortunate to have so much support from family and friends both in NY and in Seattle. For the first few weeks before we settle in at the hospital and in the Ronald McDonald House we are staying with the family of some friends from undergraduate. They have been so supportive and we have been sending over stuff in advance that Idan will need for the first few weeks. Plus we have hundreds of volunteers in Seattle being coordinated by a very nice women from the community that are already planning meals, toys, and even a car for us for our stay. On our home front our families have been been here to watch Idan while we pack and to pack up anything we missed in our home after we leave. We leave tonight on a private G5 Jet with a very kind man that has so generously agreed to help Idan get to Seattle safely for the transplant.
Right now we are doing Idan’s last SubQ Infusion of IGG before we leave and packing up the rest of the doses for our trip. If all goes well with the transplant, eventually we will be able to stop the infusions as we he be able to produce his own antibodies. By this time tomorrow, we will be in a new city, starting a new journey and a new life to Idan.