Update

If you’re going into battle, it helps to have an army behind you.  Thank you for being Idan’s army!

Dear friends, family, and supporters of Idan,

Thank you so much for your continuing support.  You have given our family so much strength and hope.  Since sharing Idan’s story with the world, hundreds of people have rallied behind him, cheering him on.  You are all connected to him now, and we will be forever grateful.

In addition to our fundraising page, we have now set up a Facebook page called Help Fight For Idan. We update this page frequently with more details and pictures of Idan’s adventure.

A few quick updates on our hunt for a cure:

So far we have visited doctors in New York, Durham NC, and Boston.  We have consulted and will be visiting in the coming weeks with doctors in Philadelphia, Cincinnati and Seattle, and we have received opinions from dozens of doctors in the US and abroad, including from the UK, Canada, and Israel.   We hope to make a decision by the end of July on the best place for Idan’s transplant.

Idan’s story has been featured on ABC Eyewitness newsNBC 4, and CBS news, as well as the New York Daily News.  Look out at the end of the month for Idan’s cameo in a special on NY1 about the Affordable Care Act as well.  As a result of this media coverage, hundreds of people have visited Idan’s page and made a donation, and shared our story, and several people contacted us who are dealing with similar challenges to show their support.

Please continue to share our story and news converge with your communities and friends. We thank you for your support, prayers and thoughts.

Best,

Akiva, Amanda & Idan

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